CAPS Toolkit – Taking Charge of your Healthcare: Your Path to Being an Empowered Patient

being-empowered-patient-toolkitHospital discharge is a time during which patients and families are at their most vulnerable. There is so much information they need to know, just when they may be least able to absorb, remember and act on it. It is vital for members of the healthcare team to help patients leave the hospital with confidence, giving them the tools and information they need to make a smooth transition to their next destination. This toolkit, Taking Charge of your Healthcare: Your Path to Being an Empowered Patient, provides you with these tools.

New Article Authored by CAPS Research Team Published in Qualitative Health Research Journal

Click the image to read the full article.


CAPS Toolkit – Building the Future for Patient Safety: Developing Consumer Champions – A Workshop and Resource Guide


This guide describes the Consumers Advancing Patient Safety (CAPS) workshop process and methodology used to develop future-oriented consumers as partners and champions of patient safety.
Learn More

This project was funded under contract number HHS233200600704P from the Agency for Healthcare Research and Quality (AHRQ) of the U.S. Department of Health and Human Services. The opinions expressed herein are those of the authors and do not reflect the official position of AHRQ or the U.S. Department of Health and Human Services.

CampaignZERO’s Patient Safety Checklists

campaign-zero_patient-safety-checklistsResources & tools for families to help to prevent medical error, ensure hospital safety, avoid medication error, infections and surgical.

Patient Passport and’ mission is to support you through the process, by helping you to keep track of everything you need to ask your doctors, and everything you need to get done. The Patient Passport exists to even the playing field and improve the quality of conversations that lead to deeper and more trusting relationships between providers and patients. Learn More

BeSafeRx: Know Your Online Pharmacy

FDA BeSafeRxFDA is a national campaign to raise awareness of the dangers of buying prescription medicines from fake online pharmacies. Medicine that is approved for use in the United States has been reviewed for safety and effectiveness by the FDA. Medicine that may be approved in other countries or produced by unknown sources may have slight variations or different ingredients that could cause you to get sicker, develop a resistance to your medicine or cause new side effects. If you take more than one medication, these differences could also affect the way other medicines work or cause harmful interactions. Learn More

Partnering for Patient Empowerment through Community Awareness

partnering-for-patient-empowerment-community-awareness_logoPartnering for Patient Empowerment through Community Awareness (PPECA) is a collaboration among patient safety advocates, health sciences librarians, health care institutions, and public libraries. During the first half of 2005 several informational sessions were held at public libraries throughout Northern Illinois to raise awareness and educate consumers on patient safety issues. Learn More

PPECA was developed in collaboration with Consumers Advancing Patient Safety, the Health Learning Center of Northwestern Memorial Hospital, Zipperer Project Management and the Metropolitan Library System. The program has been funded in whole or in part with federal funds from the National Library of Medicine, National Institutes of Health, under Contract. No. NO1-LM-1-3513.

Partners in Safety: Patients, Healthcare Providers and the Community. The Walworth County Patient Safety Council – Aurora Health Care

aurora_patient_safety_councilEngaging patients and families to partner with their healthcare providers as one team is a global movement embraced by many healthcare professionals, government services and, most importantly, patients themselves. Effective communication and a strong relationship between patient and healthcare provider have been shown to improve health outcomes and reduce the risk of adverse events. With the support and recognition of a grant from the US Agency for Healthcare Research and Quality (AHRQ), Aurora Health Care has established a Patient Safety Council. CAPS has worked with Aurora Health Care on two new toolkits sharing the output of this program: How to Develop a Community-Based Patient Safety Advisory Council and How to Create an Accurate Medication List in the Outpatient Setting Through a Patient Centered Approach.

These toolkits describe the process for initiating a patient advisory council in an ambulatory setting and outline a successful patient-focused program the council launched to improve medication safety in their community. Learn More

This project was funded under contract number U18 HS15915-02 from the Agency for Healthcare Research and Quality, US Department of Health and Human Services. The opinions expressed herein are those of the authors and do not reflect the official position of AHRQ or the US Department of Health and Human Services.

Advancing Patient and Family Engagement: Developing a “Guide to Patient and Family Engagement in Health Care Quality and Safety in the Hospital Setting”

Improving the quality and safety of health care in the United States is one of the most significant challenges facing the American health care system today. A critical step on the path towards safer, higher quality care is encouraging and facilitating patient and family engagement to improve health care experiences, care delivery, and outcomes. Learn More

Designing Consumer Reporting Systems for Patient Safety Events

Since 1999, more than 25 States have passed legislation or created regulations related to hospital reporting of adverse events. Current patient safety event reporting systems are aimed at obtaining information from healthcare providers. However, patients and their family members are in a unique position to view the continuum of care, which enables them to identify gaps in care that may have contributed to adverse events. The US Agency for Healthcare Research and Quality (AHRQ) recognizes that consumers can be an important source of information about patient safety. In September 2008, AHRQ awarded a two-year contract to RTI International and CAPS to develop recommendations for ideal reporting systems that consumers would use to report their experiences with patient safety events. Learn More

Patients for Patient Safety

Patients for Patient SafetyIn October 2004 the World Health Organization (WHO) launched the World Alliance for Patient Safety dedicated to “bringing significant benefits to patients in countries rich and poor, developed and developing, in all corners of the globe.” The Alliance was established in response to Resolution WHA55.18, approved by WHO’s 55th World Health Assembly in May 2002, which urged member states to pay the closest possible attention to patient safety and establish science-based systems for improving safety and the quality of care. The resolution reflects and advances various calls to action to make patient safety a public health priority for events that have taken place in the past as well as visioning a healthcare system of the 21st Century that is systems-based and patient-centered. Learn More

Add Patients, Change Everything

Add Patients, Change EverythingCAPS launched a new initiative titled Add Patients, Change Everything! in July 2008. CAPS sought local partners to convene groups of proactive consumers who care about patient safety and other stakeholders who wish to work with patients for workshops to be held in three US cities/metro areas or regions in the United States in 2008-09. The initiative aims to develop sustainable community-based partnerships that advance patient safety in America and integrate with a growing international movement to engage consumers in preventing harm from medical error. Learn More